Hi fellow travellers, I’m really worried by the activity in this forum. For many years lot’s of users asked questions and tryied to get solutions. Nowadays I just see less and less activity over here.
And i would like to know why.
If you just wonder what is PATM, you’ll have plenty of information down here in this forum. It’s basically a disease that yet has not been discovered or explained, where sufferers tend to affect others without affecting themselves.
This may correspond with the definition of auto-inmune, but is not yet declared, just percieved by us like that.
This is something that we neither believe, at first sight. From my point of view, I never considered that this could be real, but a simple google search drove me here, and after reading +100 exact cases like mine I realized that it was indeed true.
But we are not here to cry, neither complain. We don’t want to be treated as insane, neither to get uncorrectly judged by medics as psychiatrically ill people.
They won’t never understand, exactly like we didn’t before we realized what was going on. And to be clear, realizing what was going on did not include understanding or knowing the reasons behind it.
That’s why we are here, most of us went to some doctor, super worried, trying to get an explanation. But it was refuted by some statement, a statement made by a doctor. And when it comes to health, we all know they always have the last word (doesen’t matter who or when, if they just have a medicine degree and you don’t, instantly you are just ripped off from your thoughts and overcomed with a certain statement)
I propose to ourselves to create a campaign, where we can demonstrate that we are real people behind this, and not only some characters in a forum. In many occasions I tryied to show this site to various medics, whose unfortunately didn’t give a single ****.
This campaign would be entitled: “It exists” or “It is real”. I propose to create a website and start uploading our different stories, with a photo holding a ceirtain message (therefore “it exists” or “it is real”)
I’m already aware that MeBo decided to intraprend a certain study on our condition, but I personally believe that this is more related to the lungs than to the belly. We may be taking the wrong path towards this, and it would be awful and frustrating to realize it 5 years later.
Tell me what you think about this, and please don’t try to illuminate us with the “truth” if you don’t have any proof about it. This is the main approach we should take. I personally believe that there must be a reason why all this people that came before in here are not anymore around, and would want to know why.